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In Control produce personal budget briefings for Together for Short Lives

In Control has been working with Together for Short Lives to produce a series of briefings to help voluntary sector providers of children's palliative care get ready for the introduction of personal budgets.

The briefing papers aimed at providers in England - including children's hospices - have been produced as part of a project funded by the Department for Education. From September 2014, children and young people with Education, Health and Care (EHC) plans will have a right to a personal budget. Where they want them, families will be able to use their personal budget - comprised of money allocated to them by the NHS and local authorities - to pay for many of the education, health and care services which their child needs. This two-year project aims to engage children's palliative care providers in the special educational needs (SEND) reforms.

Three briefing papers have been produced which include:

  • Briefing one: An introduction to personal budgets and how they have worked already in other settings, such as adult social care
  • Briefing two: How personal budgets will work for families of children with life-threatening and life-limiting conditions
  • Briefing three: Advice for children's palliative care services on the action they need to take to prepare for personal budgets being implemented


All three include real-life case studies and links to other resources and best practice examples.

Welcoming the new resources, Peter Ellis, Chief Executive of Richard House Children's Hospice, said: "These briefings will help to prepare services like ours as more young people and families receive their own personal budgets and seek not only to purchase services, but ask for guidance. While the new budgets present a great opportunity for families to exert more choice and control over their lives, they will challenge the way in which voluntary sector care providers operate - not least in the way we ask for and receive statutory funding. However, one of the strengths of the children's palliative care sector is our longstanding ability to provide care which is centred on the needs and wishes of children and their families. These briefings will help providers to draw on this heritage and offer greater choice and control to families as personal budgets become a reality."

For more information and to download the resources, please visit the Together for Short Lives website.

To find out more about In Control's work in this project please get in touch with communications@in-control.org.uk

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Last Updated : 16 April 2014. Page Author: Laura Bimpson.