News
Inclusivity champion to receive prestigious people's honour at the House of Lords
Julie Stansfield, from Greater Manchester is to be recognised at the Palace of Westminster with the prestigious British Citizen Award (BCA) in recognition of her extraordinary endeavours. The British Citizen Award in partnership with One Stop, is now in its ninth year and recognises exceptional individuals who positively impact their communities throughout the country. Dubbed ‘The People’s Honours’ due to the fact that anyone with an OBE, CBE of KBE is ineligible to receive a BCA, this programme recognises true community heroes for their divergent endeavours and positive impact on society.
Julie is one of only 29 individuals to be recognised at the Palace of Westminster on 26th January 2023 and will be honoured with The British Citizen Award for Services to The Community. Julie will receive the coveted BCA Medal of Honour and invited to use the post-nominals BCAc as a legacy of her achievements.
A survey about finding and keeping Personal Assistants
The Local Government Association (LGA) and Think Local Act Personal (TLAP) have facilitated a survey which has been designed by people who use *Personal Assistants (PAs) for people who use PAs. The purpose of the survey is to find out about the challenges faced by people who use PAs since March 2020, particularly in recruiting (finding) and retaining (keeping) PAs.
The survey is aimed at all people who employ PAs, or who are supported by a self-employed PA, and who pay for the PA with a Direct Payment, Personal Budget or Personal Health budget or from their own money.
You can take a look at the questions first if you want to (see below) before completing the survey on line
This is the link to the survey HERE
The closing date is 23rd January 2022
You can download a copy of the questions that you would be asked here: Here
Read more here
Building Personal Power
Baroness Jane Campbell and Julie Stansfield
As the Covid-19 pandemic emerged the partners in the Be-Human movement knew that it would cause big problems for both people and the professionals supporting them. Over many years disabled and older people and those who have long term health conditions have set out to build our personal and collective power. This is an essential part of our political struggle for rights and resources. Supporting this can be a challenging process for professionals in the care and support field at the best of times. They often work within inflexible systems which struggle to see the individual person, their life and circumstances and respond appropriately.
As Covid emerged, following a roundtable with NHSE personalised Care Group and with support from Esmee Fairburn Foundation the partners decided to take action. They needed both to make sure that people’s experiences were recorded but also to offer help. This was because though it was vital to register experience to ensure post pandemic action, this would not be enough – they had do something to help, there and then.
The report published week describes what they did. Read more here
Record your experience of care and support during the Coronavirus pandemic
Register of COVID-19 experienceThe ‘Be Human’ movement want to make sure that the response to the Coronavirus crisis does not undermine the human rights of disabled people and people with long-term health conditions or our principles
To these ends, we have set up a register to record the experiences of disabled people and people with long-term health conditions, their carers and family members, of getting health, social care services and treatment for Covid-19 during the period of the Pandemic and its aftermath. We want to learn from people’s experiences, both good and bad, and to help where we can if it is appropriate. Read more here
You can report your experience here
Advanced Care Planning – DNACPR – Statement from NHS England
NHS England and NHS Improvement, along with its many partners, are committed to ensuring the continued delivery of personalised care. However, they acknowledge there have been recent examples reported of where people’s wishes and preferences have not always been considered.
In response, on 1 April 2020 the British Medical Association (BMA), Care Provider Alliance (CPA), Care Quality Commission (CQC) and Royal College of General Practitioners (RCGP) issued a statement emphasising the importance of a personalised care plan. This was reiterated on 7 April 2020, in a letter to local system leaders from NHS England and NHS Improvement in which it was stressed that advance care planning is undertaken on an individual basis.
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